Join Others in the Parkinson’s Chat Room

This Parkinson’s Chat Room is supported by Parkinsons Recovery which was founded in 2004 to provide support, resources and information to persons currently experiencing the neurological symptoms associated with a diagnosis of Parkinson’s Disease. The chat room is one of the many free services that is subsidized by Parkinsons Recovery.

Enter any user name in the space below to access the chat room. People come and go throughout the day so when you arrive, there may (or may not) be anyone hanging around.

You may need to update your JAVA software. The system will prompt you for an update if you need one.

Robert Rodgers, Ph.D.
Road to Recovery from Parkinsons Disease
www.parkinsonsdisease.me

22 thoughts on “Join Others in the Parkinson’s Chat Room”

  1. Just checking this out. I’m a single person who needs to figure out how to manage my disorder, minimize limitations and live with both.

    1. hi, i was diagnosed pd 15 years ago at age 39, its not as bad as it first looks, its a bad one but it could be badder.
      Stay positive and don’t be ashamed to ask for suport.
      Phil

      1. Hi Phil, Sounds like you have lived with this for a while. I hate the shaking part and my specialist say they cant do anything for that.

    2. Hard to find people to chat with. Mostly doctors etc. I’m older-73 and got it 3 years ago. X big 10 foot ball play, veteran and business man semi retired. And don’t like it but I got it. Still in early stage. family doctors don’t know much and specialists don’t care much unless you are willing to cough up big money for the latest pill. Soooo.. howdy

      1. Curt, Your post sounds familiar. My husband, 78, was recently diagnosed, first with early stages PD, then I took him to Stanford, where the neurologist said vascular parkinsonism.
        She increased the sinimet to 4 times per day instead of the 3 he had been previously prescribed. To make a long story short,
        it isn’t working. I look on the internet and it says the meds used for PD do not work for VP. It’s so hard to know what to do. His problems are mostly mobile. He gets to walking too fast and falls down. Guess we’ll go back to doctor and try again. We’re getting so tired of it all. A friend of mine
        who has PD and has it under control tells us to keep trying different neurologist until we find one that knows what to do. He said he went to 6 different ones. He lives in Ark. so we can’t go to his. I hope you can find someone soon to help you.

  2. Hello. I’ve had PD for approximately 15 years. Have been on Sinemet and amantadine the whole time. I’ve been treated for melanoma in one eye and am prone to skin cancers on my face. PD medications are strongly suspected to cause cancers. Have any of you dealt with similar problems?

  3. I was diagnosed three years ago with PD, has anyone else having these zone out time or frozen times. It seems I’m the only one with this symptom.

  4. Hello everybody! I have been reading your posts and I guess I fit in here someplace. I have been diagnosed with PD not three years ago but five years ago. My daughter put three years ago in error. I am having more difficulty walking. I break out in sweats. I am hot and then I am cold. I am taking a depression medication but still feel depressed most of the time. I cry for no reason. The only time I go out of the house is when my daughter takes me to an exercise class once a week or once a month and when she takes me shopping. I miss going to work (waitress) and seeing all my friends and customers I knew. There are times I have thoughts of leaving this world. My neurologist is the Chair of Neurology at Columbia Presbyterian Hospital in Manhattan and seems as though she can’t find a better way to treat my symptoms. I am reaching out to all of you who might have suggestions on how to deal with the way my PD is affecting me. God bless you all.

    1. Hello there, I very much suspect my husband has Parkinson’s disease. He has was diagnosed years ago in his 40’s with a sleep disorder at Mayo Clinic that sometimes preceded or even coincides with Parkinson’s disease. He acts out his dreams by kicking and punching me for one( I now sleep downstairs). He also tried to strangle our small dog as he thought there was an intruder in the house but she let out a peep and he woke up luckily. And he falls out of be quite often. he moves very, very, slowly. His joints are very stiff, he cries alot. and he won’t get out of bed for days. He pushes himself to go to work and and when he has a few days off he never leaves the bed. His memory is failing. He blames me for things. nd lately he has been in bed with cold and hot swets with no fever. He is not the man I married. I went into the hospital for an operation and had terrible problems and almost died. he came to see me once and never called. He won’t go to the doctor. What should I do?

  5. Hi everyone,
    Thanks for your shares, it’s nice to have support from others. I am caregiver to a family member with PD. There’s a new medication called Northera which is supposed to help level blood pressure drops (which can cause dizziness ). However I’ve noticed my family member becoming more irritable and anxious while on this medication. His toes are losing circulation and nails have turned white. Is anyone familiar with this drug??

  6. I was recently diagnosed with PD and am currently taking simenet I am 52 and am confused on whether or not to tell employer about my condition I work outside in a bucket truck and ladders on the comm lines I don’t want to lose my job I have a child still in high school any suggestions my symptom’s are tremors which are mostly controlled by MEDS it feels like other symptoms are starting too like slight dizziness

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